The Past Seven Years, by Cindy Schatz
Created by Darren 8 years ago
Here is
some history of Cindy's cancer journey.....this was written by Cindy in June
2014
(just before her stem cell transplant) and posted on her facebook page.
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The past seven years have seen me and my family go thru pure hell with this
devil called cancer. The type of cancer I have is called Peripheral T-cell
Lymphoma, non-Hodgkins. It is a rare strain, very aggressive, has a very high
rate of re-occurrence, and a lousy 5 year survival rate.
Of course, the statistics aren't good, but to these I say “Bullshit”! I have a
very strong warriors spirit and I will fight this until the bitter end.
I have two kids to raise (Olivia, 11 and Danny 7), and I'll be damned if they
grow up without a mother.
This filthy devil called cancer has really put my family thru hell. Between
non-stop appointments, tests, treatments, hospital stays, etc. ones life
becomes like living on a treadmill. It becomes difficult and downright
impossible to have much of a life or even make plans to do anything knowing
that your plans and such could possibly be cancelled or re-scheduled, at the
last minute, because of cancer. A simple fever or infection can land me in
hospital for days or weeks at a time. Twice in their lifetime, my kids have had
to visit me in the hospital on Christmas Day. I have also, in the past, been
hospitalized on New Years, Easter, and birthdays.
#1 November 2007. Skin cancer in my throat. A really brutal battle. Six weeks
of chemotherapy and radiation daily at Tom Baker Cancer centre in Calgary.
Spent 56 days in Foothills Hospital, recovering from treatment. Spent Christmas
day and New Years Day in hospital. Lost my ability to swallow and had to be fed
by tube. Lost my voice. Couldn't make a sound. Had to “talk” by writing things
down. What hurt the most was the loss of my singing voice. For the longest
time, I couldn't even hum, let alone sign lullabies to my babies. The kids were
4 and 1 at the time.
#2 September 2011. After two months of pain in my right leg, a lump emerged in
my groin. The Doctor did a biopsy and had tissue samples sent away. After two
nerve-wracking weeks of waiting, I was told I had a type of Lymphoma. More
tests were done to determine what type of lymphoma I had. It was identified as
peripheral T-cell lymphoma, non-Hodgkins. Was told it was a very rare type,
very aggressive with a high rate of coming back. Was told the five year
survival rate was lousy.
I underwent 6 rounds of CHOP chemotherapy at the Jack Ady Cancer Centre,
Lethbridge. The kids were 8 and 5 at the time.
February 2012. Preparations began for me to receive a Autologous Stem Cell
transplant. It was deemed a promising treatment for the lymphoma I have. First
there was the stem cell harvest, known as apheresis. It is like giving blood
out of one arm. Your blood is collected, stem cells are filtered out and frozen
for transplant. The remaining blood is then transfused back into your other
arm. Now during the entire procedure which was done 8 hours per day over two
days, I could not get up from bed – not even to use the toilet or to feet
myself. That's where Mr. Bedpan comes in to relieve you. The nurses had to feed
me, as my arms were braced down. Stem cell transplant happened on March 27th at
the Tom Baker Cancer Centre in Calgary, I spent three weeks in the Foothills
Hospital. We were optimistic that I could get 5 to 10 years remission with this
treatment – but that wasn't the case.
#3 December 2012. Lumps emerged again, this time in my armpits. Tests in
December and January 2013 revealed more of the same lymphoma as last time. I
was hospitalized over Christmas. January 25th I was told that I would have 3-6
months without chemo, 6 to 12 months with chemo and possibly 24 months with new
medications. I was now considered terminal. So, I took the chemo route, but
also used naturopathic therapy as well. I did Vitamin C by IV and Mistletoe
injections. I was booked for six rounds of GDP chemo at the Jack Ady Cancer
Centre, but they stopped after four as it was really affecting my hearing. But
with the naturopathic treatments the other side effects were considerably less
(less nausea, less fatigue, and less infections). With any infections I did
get, I rebounded much faster than times without naturopathic treatments. The
kids were 9 and 6
#4 November 2013. Shortly after moving to Saskatchewan my lymphoma returned
once again. This time it was localized in my groin and was treated with three
weeks of daily radiation at the Saskatoon Cancer Centre in Saskatoon, SK. It
seemed to get rid of the lumps, but it was only temporary.
#5 February 2014. Underwent Brentuximab Vedotin chemo at the Saskatoon Cancer
Centre. This is a fairly new type of chemo on the market, and is very expensive
(something like $30,000 per treatment). The battle has been a tough one as all
the nasty side effects have me spending more time in hospital, than at home
with my family. So many trips to emergency, so many weeks in hospital over the
next four months. Allogeneic Stem Cell transplant booked for May, delayed to
June.
After Brentuximab Vedotin typically patients are put on palliative care, and
given comfort medications until the end. That is how it would have been, had we
remained in Alberta.
Here in Saskatchewan my Oncologist is willing to go outside the “norm” and try
a Allogeneic Stem Cell transplant. There are no other cases of Lymphoma
patients in Canada going from Brentuximab Vedotin chemo into a Allogeneic Stem
Cell transplant. It is my best option of survival, yet the fatality rate is
high. Like I said, normally they would put me on Palliative care and keep me
comfortable until I die in less than 6 months. But, that isn't what I want to
do. I want to win, I want to put this into remission once and for all.
I medically require a caregiver, so my husband has taken unpaid leave from work
to be by my side as I go through this stem cell transplant. I will be
hospitalized for at least a month and medically required to remain in Saskatoon
for the next four to six months. The next several months will be extremely hard
on me and my family, but if it works – it will be worth it, I want to be there
for my kids.
But, I must admit that this veteran warrior is starting to suffer some serious
battle fatigue. The trouble with battling cancer is that it is in your face 24
hours a day/7 days per week with no respite. Even when it has gone into
remission, you always look over your shoulder just waiting and wondering when
it will return.
My kids were only 4 and 1 when cancer hit for the first time. Their normal is a
life with cancer, they do not know a life without looking over your shoulder to
see if cancer is back – or facing the next battle. Both kids have behavioural
issues, but who wouldn't? The kids have had birthday parties, holiday trips and
family gatherings cancelled because of Cancer and/or its side effects. Money
that had been set aside for trips, birthday parties, renovations and so on have
all been used on cancer treatments.
My kids medical, dental and vision care takes a back seat to my treatments. Fix
their teeth, get them glasses, or keep me alive – it isn't fair having to make
such decision and sacrifices. But, that is the daily reality that we are faced
with.
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UPDATE: The Stem Cell worked. Cindy was cancer free!
But, the many infections she had, took their toll on her body. One
of those took her from this Earth on Valentines Day 2015.